Kan COVID-19 trigge ME/CFS?

English Version (Google Translate)

I mars 2020 stengte store deler av verden ned grunnet coronapandemien. Tusenvis av COVID-19 pasienter har siden den gang utviklet et sykdomsbilde tilsvarende ME/CFS. Hvordan vil verden håndtere det?

Samleside – 60 artikler

Rundt 80% av dem som er rammet av ME er blitt syke som følge av en virusinfeksjon.
3,5 måned etter Norge stengte ned har verken helsemyndighetene eller mediene formidlet denne risikoen til befolkningen.

På helsenorge.no står det at normalt sykdomsforløp etter coronasmitte er 2-6 uker, avhengig av om man er mildt eller alvorlig rammet. Flere opplever nå at det ikke er tilfelle for dem.

Dette er en samleside med 60 artikler fra inn- og utland i perioden april til juni 2020, som omhandler pasientene som forblir syke og ME/CFS. Et arkiv som dokumenterer den første tiden etter pandemien brøt ut, en gryende internasjonal anerkjennelse av ME som en alvorlig, kronisk sykdom – og dessverre et akterutseilt Norge.

 

Artikler April 2020


2/4/2020 – Simmaron Research

Will COVID-19 Leave An Explosion of ME/CFS Cases in its Wake?

“COVID-19 presents a unique opportunity to catch the emergence of post-infectious illness in its tracks. The dark cloud that is the coronavirus could produce a silver lining after all.”

 

13/4/2020 – New York Times

We Need to Talk About What Coronavirus Recoveries Look Like

Fiona Lowenstein, fire uker etter hun ble syk med COVID-19:

“In the time since, I’ve experienced fatigue, intense headaches, continued congestion, a sore throat, trouble focusing and short-term memory loss. Even more confusing than the arrival of new symptoms is the way my progress seems to stop and start. While the overall trajectory has been one of improvement, good days are often followed by bad ones, and I’m still far from my normal, active self.”

Fiona har også etablert en støttegruppe for COVID-19-pasienter.

 

17/4/2020 – Åpent brev fra Dr. Mady Hornig

What does COVID-19 portend for ME/CFS?

“ME/CFS is an understudied, persistent, severe disease with a huge individual and societal toll. It is often triggered by acute viral-like episodes and is reported after other severe coronavirus infections. Investment in research into the association of SARS-CoV-2 infection with ME/CFS has never been more timely or well leveraged.”

Dr. Mady Hornig publiserte i 2015 en studie som viser klare forandringer i pasientenes immunsystem. Studien var det første robuste beviset på at ME er en biologisk sykdom.

 

Artikler Mai 2020

 

5/5/2020 – British Medical Journal (BMJ)

Paul Garner: For 7 weeks I have been through a roller coaster of ill health, extreme emotions, and utter exhaustion

“The illness went on and on. The symptoms changed, it was like an advent calendar, every day there was a surprise, something new. Gentle exercise or walking made me worse—I would feel absolutely dreadful the next day.

Paul Garner, som er lege og professor i tropemedisin, har skrevet to oppfølgingsartikler i BMJ den 19/5 og 23/6, og er omtalt i flere av artiklene i denne oversikten.

 

10/5/2020 – MEAction

Researchers expect COVID-19 will cause surge of chronic illness, including ME

MEAction har intervjuet Dr. Ian Lipkin, Dr. Alain Moreau og Dr. Chris Ponting.

Dr. Lipkin:

“I wouldn’t suggest that coronavirus is the cause of ME; rather, innate immune mechanisms in response to a virus may cause it, meaning that many viruses can probably initiate ME/CFS.”

Dr. Moreau:

“Coronavirus leading to more cases of ME will happen for sure, unfortunately.” 

 

11/5/2020 – Huffington Post

Coronavirus Is Leaving People With Serious Fatigue – What Can You Do About It?

Intervju med professor Paul Garner og Dr. Charles Shepherd, medisinsk rådgiver for den britiske ME-foreningen.

“What experts do agree on is that people experiencing fatigue after suspected coronavirus need to listen to their bodies – if you push yourself too hard too soon, this may slow your recovery.”

 

12/5/2020 – Dr. Oz

What Do We Know About The Long Term Effects Of Surviving COVID-19?

Videointervju med Dr. Ian Lipkin, som bl.a. sier de vil undersøke om COVID-19
kan trigge ME/CFS (fra 5.30 min).

Lipkin er forøvrig en av hovedtalerne på en stor ME-konferanse i Stavanger
22. – 23. september 2021. Arrangør er ME-foreningen i Rogaland.

 

Ian Lipkin 1 uten navnIan Lipkin 2

 

12/5/2020 – University of Leicester 

Patients at higher risk of developing ME after COVID-19 diagnosis

“From previous studies involving patients with Epstein Barr and SARS, it has been estimated that one in ten people (10%) recovering from COVID-19 could develop ME. 

Artikkelen beskriver også PEM (Post Exertional Malaise) – hovedsymptomet som skiller ME fra andre utmattelsestilstander. PEM betyr sykdomsforverring etter minimal fysisk, mental og sosial aktivitet. ME-foreningen i Rogaland har laget en kort animasjonsfilm som beskriver PEM. Den finnes også på engelsk og kan tekstes på ni ulike språk.

 

15/5/2020 – The Guardian

“Weird as hell”: The COVID-19 patients who have symptoms for months

“The virus is certainly causing lots of immunological changes in the body, lots of strange pathology that we don’t yet understand. This is a novel disease. And an outrageous one. The textbooks haven’t been written.”

 

17/5/2020 – TV2

Dette er en helt annen side av viruset som ikke har fått noen oppmerksomhet

«Hver gang Garner trodde han ble bedre slo symptomene tilbake med full kraft og i ny form.»


18/5/2020 – ABC News Australia

Coronavirus patients with even mild cases of COVID-19 are taking months to recover and suffering extreme fatigue

“You just pray every day that it will go away.”

 

19/5/2020 – British Medical Journal (BMJ)

«Paul Garner: Covid-19 and fatigue – a game of snakes and ladders”

“I am reading materials about pacing and CFS/ME and listening to the CFS/ME community. I am taken aback that doctors have been so dismissive of what these patients have been saying for so long.”

 

19/5/2020 – Open Medicine Foundation (OMF)

OMF Funded Study: COVID-19 and ME/CFS

OMF er en organisasjon som finansierer ME-forskning ved Stanford og Harvard University i USA, Uppsala University i Sverige og University of Montreal i Canada.

Nå støtter de også forskning på COVID-19-pasienter:

“After COVID-19 patients recover from the acute phase of their disease, they may be at significant risk for a prolonged period of post-viral fatigue, which may last six months or more before returning to their previous normal state. However, for some patients, their fatigue may fail to resolve or become even more profound over these initial six months and continue indefinitely, converting to ME/CFS.”

Professor Ron Davis er faglig styreleder i OMF, og en av hovedtalerne på
ME-konferansen i Stavanger 22. – 23. september 2021.

Ron Davis 1Ron Davis 2

 

21/5/2020 – Bustle

ME/CFS Diagnoses Could Rise After Coronavirus, Researchers Suggest

Karl Morten (Ph.D), ME-forsker ved Oxford University:

“With viral and bacterial infections and stress being proposed as potential triggers in ME/CFS, it is possible that high levels of severe COVID-19 infections could lead to an increase in cases of ME/CFS in the future.” 

Artikkelen inneholder også uttalelser fra Dr. Lucinda Bateman (M.D), Professor Maureen Hanson (Ph.D) og Jennifer Brea (regissør av Unrest, grunnlegger og leder av MEAction).

 

21/5/2020 – INEWS (britisk morgenavis)

The people who can’t shake off coronavirus

“Week nine and I’m exhausted and back to being bed bound.”

 

21/5/2020 – Jennie Jaques (britisk skuespiller)

COVID-19 & the 2nd wind blows into ME/CFS

Jennie er ambassadør for OMF og benytter pandemien til å rette søkelyset på ME og behovet for mer støtte til forskning.

“Imagine being fit and healthy, catching a virus, surviving it, but never getting better.”

 

26/5/2020 – The Mighty

COVID-19 May Cause Hallmark ME/CFS Post-Exertional Malaise

Heather Hogan, ti uker etter hun fikk symptomer på COVID-19:

This fatigue I’m talking about, which isn’t just feeling tired or sleepy, but like there’s no bones in my body and gravity is pushing down extra hard on me, to the point that I can’t lift my arms above my head.»

 

30/5/2020 – Washington Post

Researchers warn COVID-19 could cause debilitating long-term illness in some patients

Artikkelen er skrevet av Brian Vastag (ME-syk siden 2012) og Beth Mazur (ME-syk siden 2009 og en av grunnleggerne av MEAction). Den er delt videre av en rekke andre store medier.

“Given the historical neglect of ME/CFS — very few medical students even learn about it — many physicians and researchers who follow covid-19 patients may think they’re discovering a new phenomenon in the patients who are slow to recover. Instead, they’ll be rediscovering a common illness that’s been known, and neglected and afflicting many people — for decades.” 

 

31/5/2020 – Health Rising

Major Media Article Highlights Link between COVID-19 and ME/CFS

Artikkelen omhandler overnevnte artikkel i Washington Post og en planlagt COVID-19-studie ved det amerikanske folkehelseinstituttet (NIH).

«The article report that Avindra Nath – the head of the NIH’s Intramural ME/CFS study – is “gearing up” for å similar COVID-19 study and plans to bring COVID-19 survivors into the hospital this summer to study them. His results will be heard.”

 

Artikler Juni 2020

 

3/6/2020 – Pressemelding fra kongressmann Jamie Raskin (USA)

Raskin introduces legislation to address America’s hidden health crisis

Jamie Raskin er kongressmann i Representantenes Hus, og har introdusert et lovforslag som skal utvide det amerikanske folkehelseinstituttet (NIH) sin finansiering av postvirale kroniske nevroimmune sykdommer, inkludert CFS/ME, i kjølvannet av COVID-19-pandemien.

“We cannot let the number of ME/CFS cases rise due to a lack of research and understanding. As we battle the coronavirus, this critical legislation will help us respond to this ME/CFS hidden health crisis.”

 

4/6/2020 – The Atlantic

COVID-19 Can Last for Several Months

Artikkelen er skrevet av den prisbelønte vitenskapsjournalisten Ed Yong, og forteller historien til ni COVID-19-pasienter som ikke er blitt friske. Det er også intervju med Jennifer Brea (leder for MEAction).

“ME/CFS is typically diagnosed when symptoms persist for six months or more, and the new coronavirus has barely been infecting humans for that long. Still, many of the long-haulers’ symptoms “sound exactly like those that patients in our community experience,” says Jennifer Brea”

Ed Yong 2

4/6/2020 – Vox

No one knows why these COVID-19 patients’ symptoms keep relapsing

“When am I going to be free from this?”

Artikkelen omhandler fire pasienter som ikke er blitt friske og fire potensielle årsaker til dette. En av årsakene er: «Relapses might be chronic post-viral syndromes»

“Some researchers are also concerned that Covid-19 might trigger ME/CFS ”

 

5/6/2020 – Health Affairs

Why Do Some Recover From COVID-19 Quickly, While Others Seem Likely To Face Long-Term Disability?

Artikkelen er skrevet av Dr. Mady Hornig (ME-forsker) og helsejournalist David Tuller.

“If the history of medicine is a guide, a proportion of COVID-19 survivors will not fully recover and will develop disabling and chronic neurologicaldysfunctions and other disorders.”

“Many if not most ME/CFS patients date the start of their illness either to a case of mononucleosis, a cold, or some other acute infectious episode.”

 

7/6/2020 – The Guardian

“It feels endless”: four women struggling to recover from COVID-19

Intervju med fire pasienter som ikke er blitt friske.

Sitat Ginevra Read (psykiater) som har vært syk i 11 uker:

“We don’t know what is causing prolonged Covid. Is it the ongoing initial illness, or is it an inflammatory reaction or is it a post-viral syndrome? It’s scary to have an illness for which there isn’t any treatment and that doesn’t seem to be going away.”

 

10/6/2020 – Thailand Medical News

BREAKING! French COVID-19 Research Reveals That The Hypothalamus Region Of The Brain Is Also A Target For The SARS-Cov-2 Coronavirus

Fransk studie viser at coronaviruset kan angripe hjernen (hypothalamus):

“With increasing evidence coming to light associating SARS-CoV-2 infection with a wide range of neurological symptoms such as headaches, dizziness, nausea, loss of consciousness, seizures, encephalitis etc. as well as anosmia or ageusia in more than two-thirds of patients , the researchers wanted to explore as to how the coronavirus was affecting the brain and CNS or Central Nervous System.”

Forskning viser også at ME-pasienter har nevroinflammasjon i hjernen.
Se evt. mer info. under 26/6/2020: Reuters.

 

10/6/2020 – New Republic

Will My COVID Symptoms Ever End?

Artikkel om pasienter som forblir syke, men som finner støtte i å treffe andre i samme situasjon på nettet, hvor de deler sine erfaringer – bl.a. rådene de får fra leger:

“Stop worrying and have a relaxing bath”; “It’s anxiety, have a pill”; “It’s allergies”; “I think it’s your new dog”; and, most bizarrely, “Go home, drink one box of Gatorade, then look at the mirror and say to yourself, I am fine.”

Det er også intervju med Dr. Mady Horning (ME-forsker og professor i epidemiologi ved Columbia University).

 

New Republic

 

12/6/2020 – ABC Nyheter

Langtidssyke coronapasienter: – Vi faller mellom alle stoler

Sitat kvinne i 40-årene som etter tre måneder fortsatt har symptomer:

“Hos fastlegene blir vi møtt med undring og holdninger som «dette kan ikke skyldes covid-19.» Kunnskapen er fraværende, og oppfølging og behandling like mangelfull. Vi faller mellom alle stoler, sier hun.”

 

13/6/2020 – Open Medicine Foundation

In the News: OMF Funded Study on COVID-19

OMF kommenterer siste ukers pressedekning og kongressmann Raskins lovforslag.

“The underlying message of the new articles & legislation is the same: We must take immediate action by driving critical research into COVID-19’s sequela so we can ascertain whether COVID-19 converts to ME/CFS, carefully studying the molecular transformation if it occurs.”

 

13/6/2020 – Dagens Næringsliv TV

Tusenvis av pasienter sliter med vedvarende koronasymptomer

Dr. Avi Nath fra det amerikanske folkehelseinstituttet (NIH) forteller at tusenvis av COVID-19-pasienter har utviklet samme sykdomsbilde som ME/CFS, og at de håper forskning på disse pasientene kan øke forståelsen for hvordan postvirale syndromer dannes. (Varighet 3 minutt)

Til sammenligning har det norske Folkehelseinstituttet (FHI) reklamert for et lynkurs i mentale teknikker som behandling mot CFS/ME under pandemien. Forskningssjef Signe Flottorp uttalte nylig til Dagbladet at Lightning Process er en “viktig behandling” mot CFS/ME.

Signe Flottorp; forske LP
Smittevernoverlege Preben Aavitsland ved FHI har under pandemien også omtalt ME-syke som klager på leger som anbefaler feil og skadelig behandling for trakasserende aktivister, og at Rådet for legeetikk bør avvise disse klagene uten å bry legene.

 

Preben; Legerådet, trakassering, skammelig Preben; avvise klager fra ME-syke; uten svar fra Benedicte

 

14/6/2020 – The Times

«I had the coronavirus months ago but I’m still too ill to work… or even watch TV”

“The 22-year-old, a personal trainer from Oxford who normally breezed through 10-mile runs, suddenly found himself bed-bound. He presumed it would soon blow over, but 12 weeks after falling ill as the country went into lockdown, he is still not back to normal.”

 

17/6/2020 – Open Medicine Foundation

COVID-19 and ME News Flash from Uppsala

Intervju med Jonas Bergquist, professor i nevrokjemi ved Uppsala University i Sverige, som skal forske på COVID-19-pasienter.

“We are already looking for neuroinflammatory markers and nerve cell markers in ME patients, so we are attempting to see if these are also found in COVID-19 patients’ spinal fluid.”

 

19/6/2020 – Forbes

Not Just An Acute Infection: The Prolonged Onslaught Of Coronavirus

Dr. Geeta Karnik Mantravadi:

“Although the majority of people with Covid-19 recover within two weeks, we are seeing many patients complaining of chronic fatigue, muscle aches and persistent intermittent fevers.” She adds that some patients have headaches, difficulty concentrating and other neurologically debilitating symptoms.”

Dr. Divya Bappanad:

“This post-infectious, long-term fatigue is similar to myalgic encephalomyelitis or chronic fatigue syndrome.”

 

20/6/2020 – The Times of Israel

‘Recovered’ COVID-19 patients suffer major ongoing physical, cognitive problems

“As coronavirus patients recover from the illness, doctors and patients are discovering that COVID-19 is leaving the “recovered” with long-term debilitating physical, cognitive and psychiatric damage, sometimes even in people who only suffered mild symptoms.”

 

22/6/2020 – The Telegraph

Scars of Covid-19 could last for life as doctors warn of long-term damage to health

“Healthy people, who were in their 40s and 50s when the virus struck, are now facing anxiety, chronic fatigue and disability for years”

 

23/6/2020 – British Medical Journal (BMJ)

Paul Garner: Covid-19 at 14 weeks—phantom speed cameras, unknown limits, and harsh penalties

Professor Garner, som er nevnt flere ganger tidligere, er fortsatt syk etter 14 uker. Han kan kun være oppe i 3 timer, før symptomene tvinger ham tilbake i seng.

“Health services are largely institutionally prejudiced against people with chronic fatigue and ME, and in some cases these attitudes are framing the service response to covid-19.

This stuff is real. People are ill. Doctors need to stop diagnosing this as anxiety.”

 

23/6/2020 – CNN

Symptoms of coronavirus can last several months

Intervju med professor Garner og Athena Akrami (PhD i Neuroscience) som begge har vært syke i ca. 100 dager. Garner snakker fra 2.20 min, nevner ME/CFS og fraråder trening fra 4 min.

 

23/6/2020 – British Medical Journal (BMJ)

Helen Salisbury: When will we be well again?

“While the general expectation is that coronavirus symptoms resolve in two or three weeks, a significant number of patients are not getting better. Referred to in the press as “long haulers,” many people are still suffering with symptoms three months into the illness.”

 

23/6/2020 – BBC Radio Scotland

Radiointervju med professor Chris Ponting (fra 20.40 – 23.40 min.)

23. juni 2020 ble kjent at britiske myndigheter investerer 3,2 millioner pund i å kartlegge og analysere genene til 20 000 ME-pasienter. Studien DecodeME er verdens største ME-studie og skal ledes av professor Chris Ponting ved Universitetet i Edinburgh:

“We expect many people will have a virus and not fully recover, so there might be a deficit in the immune system. It may be another problem in mitochondria and we will look for that too. We will be looking at all possibilities, not just one.”

 

Chris Ponting

 

24/6/2020 – The Times

The Times view on taking ME seriously: Chronic Condition

Lederartikkel dagen etter studien DecodeME ble kjent.

“ME is finally being taken seriously just as Covid threatens an increase in sufferers”

 

The Times 1
Chief Reporter, The Times

24/6/2020 – FOX 5

‘Today is day 93’: People report experiencing COVID-19 symptoms that last for months

Artikkel med flere videoinnslag, bl.a. intervju med Dr. Mady Hornig (nevnt flere ganger i oversikten). Hun har selv symptomer 11 uker etter hun ble smittet av coronaviruset.

Det er også intervju med den amerikanske organisasjonen Solve ME/CFS:

“ME/CFS is an urgent public health crisis based on what is happening in our country right now. Evidence suggests that a virus as serious and widespread as COVID-19 could ignite rapid and significant growth in the ME/CFS population in just 36 months.”

 

24/6/2020 – VG

Studie: Økt risiko for nevrologiske sykdommer etter coronasykdom

Intervju med nevrolog Anne Hege Aamodt, som også er styreleder i Hjernerådet og leder for Norsk nevrologisk forening.

Selv om WHO har klassifisert ME og Postviralt utmattelsessyndrom (G93.3) under nevrologi/sykdommer i hjernen siden 1969, og selv om 80% av pasientene er blitt syke som følge av en infeksjon, nevnes ikke ME som en mulig sykdom i etterkant av COVID-19.

Istedenfor nevnes “nevropsykologiske og nevropsykiatriske tilstander som depresjon, posttraumatisk stressforstyrrelse og fatigue” som mulige utfordringer.

Hjernerådet

 

25/6/2020 – The Sun

 NHS faces ‘post coronavirus tsunami’ as survivors are struck by ME, docs warn

Dr. Charles Shepherd, Medical Advisor ME Association:

“Some are also developing a post COVID-19 syndrome with symptoms that are seen in people with ME. Providing proper support and management for people with post COVID-19 fatigue and post COVID-19 ME is going to be a huge challenge for the health services in the months to come.” 

 

25/6/2020 – The Times

Infectious diseases expert warns of spike in ME cases

The Times 2

 

25/6/2020 – The Times

Letters to the Editor – Research into chronic fatigue syndrome

Fire brev om ME/CFS, hvorav to er fra politikere i det britiske parlamentet:

Jeremy Hunt: “When I was health secretary (2012 – 2018) I met families devastated by the onset of a disease that was sometimes dismissed as being a fabrication.”

Carol Monaghan: Carol Monaghan

 

25/6/2020 – The Week

Coronavirus and ME: doctors fear wave of chronic fatigue syndrome

“The little-understood disease CFS/ME is often triggered by viral infections. One potential cause is a change in the “immune system and the way it responds to infection”, says the US Centres for Disease Control (Føderal etat underlagt Helse- og omsorgsdep. i USA)

 

25/6/2020 – WBUR Boston’s National Public Radio (USA)

Lingering Symptoms, Long-Term Damage: For Some, It’s A COVID-19 Recovery Reality

Podcast om langvarige symptomer i kjølvannet av COVID-19. Varighet 47 min.

Intervju med lege Mafuzur Rahman og vitenskapsjournalist Ed Yong (artikkel i The Atlantic 4/6/2020): 

Ed Yong 1

 

25/6/2020 – Studie

Post-viral fatigue and COVID-19: lessons from past epidemics

“Past research on post-epidemic and post-infection recovery has suggested that such complications include the development of severe fatigue.”

 

26/6/2020 – Reuters

Severe COVID-19 can damage the brain, preliminary study finds

“The study also found that 39 of the 125 patients showed signs of confusion or changes in behaviour reflecting an altered mental state. Of these, nine had unspecified brain dysfunction, known as encephalopathy, and seven had inflammation of the brain, or encephalitis.”

Inflammasjon i hjernen

ME-forsker Jarred Younger (PhD) hadde i 2018 et foredrag om inflammasjon i hjernen på OMF sin årlige ME-konferanse: How brain inflammation causes ME/CFS. 

I 2019 publiserte han en studie som indikerer at nevroinflammasjon er involvert ved ME/CFS. Samme år fikk han 2,9 millioner USD av det amerikanske folkehelseinstituttet (NIH) for å fullføre en større studie på hjernen til ME-pasienter.

Norske helsemyndigheter ga i 2019 derimot sin støtte til at det skal forskes på Lightning Process som behandling mot ME/CFS, selv om pasientene i flere år har rapportert at lynkurset er skadelig. Forskningsrådet har i 2020 kun gitt finansiering til dem som hevder pasientene kan tenke seg friske, totalt 14 millioner kroner

 

26/6/2020 – INEWS (lokalavis London)

Chronic fatigue syndrome sufferers hope for breakthrough as they fight for recognition

Intervju med to pasienter og en pårørende (leder i Action for ME).

“In 1970, two psychiatrists, Colin McEvedy and Bill Beard, published a report that declared the illness was “mass hysteria”, citing as evidence the fact that many who fell ill were young women. Neither man had seen a patient.”

“It is clear from talking to ME sufferers that the disbelief is devastating. “Two things have wrecked my life,” says Marlow. “One is the disease and the other is the trauma from not being believed.”

 

26/6/2020 – Aftonbladet

Läkare kritiseras för inlägg om långtidssjuka: ”Galghumor för att orka med”

Svenske leger gjør narr av pasienter som ikke er blitt friske av COVID-19.

 

26/6/2020 – MEAction

Post-covid research & clinical care must include ME/CFS

“It is vital that researchers and clinicians who treat and study long-haulers understand ME/CFS diagnostic criteria and management advice. Common rehabilitation approaches, such as graded exercise therapy, can cause permanent damage in people with ME/CFS, and COVID-19 patients experiencing long-term symptoms have been urged to avoid graded exercise for this reason.”

 

26/6/2020 – Dokumentar (YouTube)

Dokumentaren “Chronic Fatigue Syndrome & ME” belyser sykdommens skandaløse historie og verdenssamfunnets svik ovenfor pasientgruppen. Varighet 1t 25 min.

 

26/6/2020 – Global News

Risk of never fully recovering after coronavirus ‘very real,’ scientists say

 

27/6/2020 – CNN

Reporter siterer CNN Medical Analytic Dr. Seema Yasmin.

“Some younger coronavirus victims are staying sick longer, and it’s not clear why.
And she warns; contracting the virus when they’re young, can expose some people to getting chronic fatigue syndrom, which can stay with them for life.”

27/6/2020 – Expressen

Kvinnorna som inte blivit friska efter coronaviruset

Artikkel i svenske Expressen om langvarig sykdom i kjølvannet av Covid-19, inkl. videointervju med ME-forsker Jonas Bergquist (Uppsala University):

“En förklaring till varför vissa blir sjuka länge och har svårt med återhämtningen efter att ha haft covid-19 kan vara att energifunktionen i cellerna har påverkats negativt, säger han. Detta har man bland annat sett även hos ME-patienter, vilket innebär att man kan få bakslag om man överanstränger sig när man mår lite bättre.”

 

28/6/2020 – The Guardian

The coronavirus ‘long-haulers’ show how little we still know

 

28/6/2020 – The Times of Israel

‘It’s frightening’: Doctors say half of ‘cured’ COVID patients still suffer

Dan Oyero, Deputy Director of medicine in Central Israel:

“The most distressing thing is that people compare how they feel now compared to how they were a few weeks ago before they were infected,” he said. “And they say they just can’t do the things they used to do.”

 

29/6/2020 – Independent

‘As lockdown eases, those of us with chronic illnesses must not be left behind’

“Worryingly, one of the long-term effects of corona is chronic fatigue symptoms, leaving previously healthy people unable to manage simple daily tasks. ME is thought to be triggered by viral infections, yet the extent of its impact remains underreported. 

 

29/6/2020 – RESET Podcast fra Vox 

Covid-19 “long-haulers” find a community online

“For some, recovering from Covid-19 will be a long struggle. Those still recovering months later are finding support – and information about the enigmatic disease – online.”

Varighet 28 min. ME/CFS nevnes fra ca. 23 min.

 

30/6/2020 – Dagbladet

Den vonde følelsen sitter i

Dagbladet og en gruppe helsepersonell har under pandemien erklært “ME-krig” mot pasientene. De anser ME som en psykosomatisk tilstand man kan kurere ved hjelp av mentale teknikker, og pasienter som protesterer kalles alt fra aktivister til en fare for demokratiet.

Psykologspesialist Grete Lilledalens kloke tilsvar blir siste ord og artikkel i samlearkivet:

“Mitt håp er at framtidig dekning av ME vektlegger at WHO klassifiserer sykdommen som nevrologisk. At anstrengelsesutløst forverring er en forutsetning for ME-diagnose, og at NIH har fjernet kognitiv terapi og grader trening fra behandlingsråd.”

 

Antall smittede pr. 1/7/2020

Da Norge stengte ned 12. mars 2020 var det 621 personer med påvist coronasmitte.
Når dette innlegget publiseres er status:

  • 8887 personer har fått påvist smitte i Norge
  • Over 10,7 millioner har fått påvist smitte globalt
  • Over 500 000 har mistet livet globalt, hvorav 250 personer i Norge

Hvor mange som vil utvikle ME gjenstår å se. For enkeltmenneskene vil det være en tragedie. For pasientgruppen ME/CFS kan pandemien være begynnelsen på slutten av en 40 års lang kamp mot ignoranse, stigma og skadelige behandlinger.

 

Hilsen Sissel Sunde

ME-syk som direkte følge av Denguefeber i 2015
Administrator av MillionsMissing Stavanger
Leave no one behind

 

2 thoughts on “Kan COVID-19 trigge ME/CFS?

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s